Changing Special Education

In spite of what many younger educators and parents of children with disabilities may think, special education has formally existed since post the World Wars era. Limb loss and head injury were the initial issues addressed by hospitals and adult services. Schools for the deaf and blind have existed since the 1800s. The first school for the deaf in the United States was founded in 1817 in Hartford, Connecticut. The first school for the blind was the Perkins School for the Blind, founded in 1829 in Massachusetts. Major access by a wider range of children with disabilities occurred in the mid-1900s, with public and private schools available within some communities and institutional settings. By 1960, special schools were the main strategy to provide educational services, particularly for students with significant disabilities.

In the 1970s, several states had begun to enact laws mandating educational services to all students with disabilities, 5-18 years of age. By the mid-1970s, some states had enacted requirements, three to 21 years of age but many of these students were still served in separate classrooms or special schools. Through the 1970s, some states had begun to provide classes in general education settings, with services provided within these settings, including occupational, physical, and speech therapy.

The Education for Handicapped Children Act was a Federal law passed in 1975 and required states to provide special education to all children 5 to 18 years of age nationwide through assessments of their needs and the development of individualized education programs (IEPs). The IEP detailed individual education interventions and therapies for each student with a wide range of disabilities.

In 1990, the law was reauthorized as the Individuals with Disabilities Education Act (IDEA) in 1990. After 1990, multiple reauthorizations have been enacted by Congress. These authorized many student changes to support children with disabilities and their families, including preschool special education services. In 1986, Part H, now Part C, was enacted, authorizing services for children from birth to 3 and provided funding to states to develop programs.

Washington Post and Rights of Students with Disabilities: My field has moved back, not forward.

To say I was let down would be an exaggeration. I waited with great hopes for the Panel Discussion on the current chaotic state of the education of students with disabilities and the lack of implementation of the requirements of the IDEA (Individuals with Disabilities Education Act).

The panel discussants were eloquent, polished in their presentations, and vibrant. They included the secretary of the federal Department of Education, the Ford Foundation program officer for disability rights, and the CEO of the National Center for Learning Disabilities. The moderator did not ask challenging questions but encouraged the presenters on the theme of their professional expertise. 

The title “Disability Rights in U. S. Schools” was only lightly touched on but on the broadest subject of access throughout life and work settings. The major themes included the shortage of teachers, professional development, salary, working conditions, and respect for the profession, all very critical issues in teacher retention. 

The rights of students with disabilities, over 15% of the public school student population, to implementation of their IEPs (Individualized Education Plans) in the appropriate educational setting were not mentioned. For some students, this would be in an inclusive classroom, while for others, special settings may be appropriate for the implementation of their IEP. The role of parents and their rights in the special education process were not mentioned. At the state and local level, where special education happens, the costs of special education are an explosive issue for education budgets, frequently a target for advocates of non-disabled students. Federal funding covers less than 10% of the costs, depending on the wealth of the state and local system. 

Key to a discussion of the rights of students with disabilities is the recognition of the specific legal and procedural requirements, in addition to the push for inclusive educational environments, and teacher training and compensation.

Implementing Services for Young Children, birth to 3, Post Covid

While many families have been struggling to work from home, stay healthy, and provide opportunities for their children, young children who may be eligible for early intervention services are not being referred to agencies providing Part C services. Referrals have declined due to a decrease in visits to pediatricians and fewer children in early care settings. Parents may have been unaware of the more subtle indicators of delay or reduced muscle tone given the chaos of pandemic issues for work, social activities, fewer play dates with age peers, and COVID anxiety.

States are being encouraged to increase their efforts to implement “child find” activities to identify, and evaluate all infants and toddlers who may be eligible for early intervention services. This will require increased efforts as families may still be working from home and options for child care remain more limited. Pediatricians nationwide are being encouraged to reach out to patients for routine well baby care and developmental assessments.

Any children, who were referred prior to the pandemic and services were disrupted by the pandemic, may be eligible for compensatory services. Referral sources are required to refer a child within seven days of when the child is suspected of having a disability. If the child is determined eligible, the initial child and family assessment must conducted and the individualized family service plan (IFSP) meeting held within 45 days. Higher priority is to be given to those children referred prior to the pandemic and if the child is over three, the EIS system must coordinate with the Part B Preschool program to meet their child find requirements. If parents have declined services during the pandemic, the State Lead Agency is encourage to recontact parents and encourage the parent to re-engage. If the child is over the age of three, information about the Part B Preschool program should be provided.

As parents and local early intervention systems become more comfortable with in-person evaluations and services, a return to a more typical model of service delivery. Getting past a backlog of referrals and evaluations may require additional temporary staff to ensure timelines and delivery of services in a more timely manner.

Check out this article from Disability Scoop: https://www.disabilityscoop.com/2021/11/01/ed-department-reminds-states-of-early-intervention-obligations-under-idea/29574/ 

Changes in Attitude and Language

Check out this article from USA TODAY:

‘I am not ashamed’: Disability advocates, experts implore you to stop saying ‘special needs’

https://www.usatoday.com/story/life/health-wellness/2021/06/11/disabled-not-special-needs-experts-explain-why-never-use-term/7591024002/

Having worked in the fields of early intervention services and special education for many decades, this story has a tired theme but one that may resonant with younger parents and professionals. My first teaching job was in 1971. I was teaching a class of “multiply handicapped” students in a school for the severely mentally retarded and educable children.

In 1975 the Education for All Handicapped Children Act (EAHCA) a comprehensive federal law known as Public Law 94-142, was enacted. It required public schools to provide a free appropriate education for all children with disabilities, ages 3 to 21. When the law was reauthorized in 1990 it was changed to the Individuals with Disabilities Education Act (IDEA). Subsequently the terms of “retarded” and physical handicaps were discarded and collapsed to the disabled.

During this time, the concept of “special needs” crept into the increasingly benign language and included those with mental health, cognitive impairments, physical disabilities, and increasingly, autism. Many parents described their children as having unique learning needs or accommodations.

Then, while I was teaching graduate students, the term of humanity first was the preferred description. Students with disabilities or students with learning challenges, emphazing that all children were children and the accompanying descriptions were secondary coniderations.

This article emphasizes the new movement with an emphasis on identify first, hence the return of the disabled student, child, or adult. It appears to be in keeping with the societal movement toward identifyinng differences as primary, underemphasizing our membership in humanity and our wholeness.

Given my longevity in this field, I am not comfortable returning to a term that can be used as a pejorative description. It has taken many years for the disabled to achieve parity with the able-bodied. When we live in a country with a President who used disability mannerisms as a political tool and a poor attempt at humor, we need to be reminded that we are all people with unique needs.

The Devastating Impact of Covid-19 on Individuals with Intellectual Disabilities in the United States | Catalyst non-issue content

The Devastating Impact of Covid-19 on Individuals with Intellectual Disabilities in the United States | Catalyst non-issue content
— Read on catalyst.nejm.org/doi/full/10.1056/CAT.21.0051

https://catalyst.nejm.org/doi/full/10.1056/CAT.21.0051

Individuals with intellectual disabilities are more vulnerable to COVID as a result of lack of access to health care and vaccines. In addition, many have sensory or behavior issues which limit mask wearing.

How to Recognize Signs of Potential Learning Disabilities in Preschool | Edutopia

Early intervention services can make a big difference for students who are at risk for learning disabilities. What should teachers look for?
— Read on www.edutopia.org/article/recognizing-signs-potential-learning-disabilities-preschool

Taking advantage of early intervention services is important, paired with screening focused on identifying risk in learners.

Development During the Pandemic

www.nytimes.com/2020/12/09/health/Covid-toddlers-playdates.html

The importance of social interaction is the substance of the daily concern of many early intervention specialists. The target population is the young child, two to five years of age. Typically developing children in the youngest group will usually benefit most from healthy parental relationships and the incidental emergence of language and cognitive skills.

Children with developmental delays are not so easily led into developmental skills. Language is often modeled through small group interactions. Cognitive skills need to be broken into tasks, each manageable for the child, expanding as the child understands and masters the skills.

Virtual learning during the pandemic for these young children with developmental issues is not the path to substantial social, emotional, and cognitive growth.

Returning to School in the Fall

Young children and students with disabilities face significant education challenges as the beginning of school in the fall approaches.  Around the country, school districts are grappling with the format and pace of programming while at the same time accommodating the learning needs of many children.  The physical obstacles include transportation of children while observing social distancing and variations in hybrid models of in-school and virtual learning.

Many young children and students with disabilities may not be willing to tolerate masks, particularly when riding for long periods of time on a bus or when attempting to communicate if dependent on sign language or communication supports.  Variability in routines will challenge children if the schedules are intermittent or are unexpectedly changed due to recurrent school closures for student or teacher illness.

Some children with IFSPs and IEPs that have not been implemented during the quarantine period may be eligible for compensatory services.  Team meetings, with parent participation, will evaluate the current levels of student functioning within the curriculum and determine any revisions that will assist the child.  Additional services may be necessary to support the child with regressions during distance learning.