Changing Special Education

In spite of what many younger educators and parents of children with disabilities may think, special education has formally existed since post the World Wars era. Limb loss and head injury were the initial issues addressed by hospitals and adult services. Schools for the deaf and blind have existed since the 1800s. The first school for the deaf in the United States was founded in 1817 in Hartford, Connecticut. The first school for the blind was the Perkins School for the Blind, founded in 1829 in Massachusetts. Major access by a wider range of children with disabilities occurred in the mid-1900s, with public and private schools available within some communities and institutional settings. By 1960, special schools were the main strategy to provide educational services, particularly for students with significant disabilities.

In the 1970s, several states had begun to enact laws mandating educational services to all students with disabilities, 5-18 years of age. By the mid-1970s, some states had enacted requirements, three to 21 years of age but many of these students were still served in separate classrooms or special schools. Through the 1970s, some states had begun to provide classes in general education settings, with services provided within these settings, including occupational, physical, and speech therapy.

The Education for Handicapped Children Act was a Federal law passed in 1975 and required states to provide special education to all children 5 to 18 years of age nationwide through assessments of their needs and the development of individualized education programs (IEPs). The IEP detailed individual education interventions and therapies for each student with a wide range of disabilities.

In 1990, the law was reauthorized as the Individuals with Disabilities Education Act (IDEA) in 1990. After 1990, multiple reauthorizations have been enacted by Congress. These authorized many student changes to support children with disabilities and their families, including preschool special education services. In 1986, Part H, now Part C, was enacted, authorizing services for children from birth to 3 and provided funding to states to develop programs.

Washington Post and Rights of Students with Disabilities: My field has moved back, not forward.

To say I was let down would be an exaggeration. I waited with great hopes for the Panel Discussion on the current chaotic state of the education of students with disabilities and the lack of implementation of the requirements of the IDEA (Individuals with Disabilities Education Act).

The panel discussants were eloquent, polished in their presentations, and vibrant. They included the secretary of the federal Department of Education, the Ford Foundation program officer for disability rights, and the CEO of the National Center for Learning Disabilities. The moderator did not ask challenging questions but encouraged the presenters on the theme of their professional expertise. 

The title “Disability Rights in U. S. Schools” was only lightly touched on but on the broadest subject of access throughout life and work settings. The major themes included the shortage of teachers, professional development, salary, working conditions, and respect for the profession, all very critical issues in teacher retention. 

The rights of students with disabilities, over 15% of the public school student population, to implementation of their IEPs (Individualized Education Plans) in the appropriate educational setting were not mentioned. For some students, this would be in an inclusive classroom, while for others, special settings may be appropriate for the implementation of their IEP. The role of parents and their rights in the special education process were not mentioned. At the state and local level, where special education happens, the costs of special education are an explosive issue for education budgets, frequently a target for advocates of non-disabled students. Federal funding covers less than 10% of the costs, depending on the wealth of the state and local system. 

Key to a discussion of the rights of students with disabilities is the recognition of the specific legal and procedural requirements, in addition to the push for inclusive educational environments, and teacher training and compensation.

Knowing the Impact of Learning Loss

            March 14, 2020, ushered in an unanticipated and fundamental change in the delivery of services for children with disabilities, upending the timely identification, assessment, evaluation, and delivery of services.  While education for all children changed, the pandemic required a unique interpretation of services for children with disabilities and a cataclysmic revisioning of the meaning of timely services and the where and location for the delivery of services.  Timelines and delivery modes were revamped, striving to revision a mode of virtual and hybrid services in a constrained model of what are early intervention and special education services consistent with federal and state laws and regulations. Initially, it was thought that federal waivers would be available. Instead, broad guidance was provided, leaving states with the responsibility to devise a broad range of substitute strategies for identification of eligible children and the delivering of services to implement diverse and individualized educational programs. 

            The myriad of issues and initial service solutions was confusing, leaving many families with the complete cessation of services and others with a near perversion of therapeutic strategies designed to address the needs of the more severely disabled.  Social and income inequities surfaced immediately with many families lacking access to internet and without the necessary technologies to participate in any form of virtual learning or services. Issues of childcare and parents as teachers have plagued the implementation of the varied models of services.  States floundered in the specific guidance needed by local systems and funding lagged to assist in modification of classrooms, delivery models, and the need to address transportation.  Solutions were as diverse as there are local systems and funding options.  

Initially many educators and parents relied on the guidance that children would return to school in the fall of 2020.  Young children and students with disabilities face significant education challenges as the beginning of school in the fall approaches. Around the country, school districts are grappling with the format and pace of programming while at the same time accommodating the learning needs of many children.  The physical obstacles include transportation of children while observing social distancing and variations in hybrid models of in-school and virtual learning.          

Many young children and students with disabilities may not be willing to tolerate masks, particularly when riding for long periods of time on a bus or when attempting to communicate if dependent on sign language or communication supports.  Variability in routines will challenge children if the schedules are intermittent or are unexpectedly changed due to recurrent school closures for student or teacher illness.     

Some children with IFSPs and IEPs that have not been implemented during the quarantine period may be eligible for extended school year, as well as compensatory services.  Team meetings, with parent participation, will evaluate the current levels of student functioning within the curriculum and determine any revisions that will assist the child to be successful. Additional educational and therapeutic services may be necessary to support the child with regressions during distance learning.

CDC Study Pinpoints Prevalence Of Intellectual Disability – Disability Scoop

Researchers from the Centers for Disease Control and Prevention are offering up a new estimate of the number of American children with intellectual disability.
— Read on www.disabilityscoop.com/2021/01/21/cdc-study-pinpoints-prevalence-of-intellectual-disability/29160/

Nationwide the CDC found 1.2% of children 8 years old had IQ scores 70 or below, qualifying these children for the traditional diagnosis of intellectual disability diagnosis. The majority, 78%, had mild intellectual disability, suggesting that many of these children can participate in educational opportunities within the regular classroom and ultimately will likely live within the community.

Nearly 12% were classified as having moderate intellectual disability and 1% are considered severe and profoundly disabled. These children require extensive modifications of the school curriculum and specially trained personnel. As adults these children with require specialized housing and support for daily functional skills.

This study also found that intellectual disability is twice as likely in boys, than girls, and in children of color when compared to white children. Nearly 39% of these children had autism.

Are You a Parent of a Student with Disabilities?

Students with educational disabilities have an IEP which details the special education services to be provided to your child. No children with IEPs have has these services provided in accordance with their IEPs since the closures of schools nationwide in March 2020. Most of America assumed, based on confusing advice from our leadership and health officials, that schools would open for in-person learning, waving farewell to the ill-conceived notion of virtual learning for students with IEPs.

Many of these children may be non-verbal, have physical disabilities, or attention deficits. Many parents work. In order to access an appropriate education, often speech and language therapy, physical therapy, and occupational therapy are required.

What is a family to do? How will these children with significant learning challenges be able to access the appropriate curriculum? Regression in learning is taking place for regular and special education students when only able to access their learning virtually.

To counteract this loss of access, some school systems are transporting students with disabilities to schools on certain days, in combination with virtual learning. Since many of these students have health conditions placing them at risk if exposed to COVID, returning to a physical classroom, mainstreamed with their appropriate grade and age peers, is too dangerous.

In-home services by teachers and other appropriately trained therapists should begin as soon as these personnel can be identified. School systems are struggling to engage personnel, provide safe transportation, physically distanced classrooms, and assess how to compensate students for their interruption of services.

While in the long-run parents will need to decide for their family what is best for their child, school systems need to provide the safe and effective environments for special education which can be safely selected by parents and children.

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